ELSI

Ethical, Legal, and Social Issues

Ethical

Respect for Persons requires that the autonomy, dignity, and all rights of the participants are respected throughout the research process. Participants should be fully informed of procedures, risks, and benefits before starting. In this research, it means participants understand this is an early diagnostic device and should not replace consultation with a licensed clinician. Respect is maintained through clear communication with participants, families (if consent is given), and medical professionals.

  • Ensure documented and ongoing consent of participants.

Social

Concern for Welfare ensures the physical, mental, and social well-being of participants is protected. Risks should be minimized and benefits maximized, and patient privacy maintained. Researchers must consider societal impacts and not use data to identify participants without explicit consent.

  • Ensure equal distribution of biosensors to prevent worsening existing health inequalities.

Biosafety

Biosafety involves training, protocols, equipment, and environments to protect researchers, the community, and the environment from accidental release of bioagents. Potential losses must be identified and evaluated, and emergency plans developed.

Potential Losses

  • L1: Misdiagnosis of Alzheimer’s condition
  • L2: Environmental contamination from improper disposal
  • L3: Loss of biosensor accuracy over time
  • L4: Loss of Life

Hazard Analysis

Hazard Description Associated Loss Refined Hazard ID Refined Hazard Description
H1 Biosensor produces false positive results L1, L4 H1.1 False positive occurs due to sample contamination before use
H1 H1.2 False positive occurs due to unrelated biomarker readings
H1 H1.3 Biosensor is used incorrectly
H2 Biosensor produces false negative results L1, L4 H2.1 False negatives occur due to low biomarker sensitivity
H2 H2.2 Signal interference causes false readings
H2 H2.3 Biosensor is used incorrectly
H3 Biosensor component degradation L3 H3.1 Manufacturing inconsistencies cause degradation before use
H3 H3.2 Storage conditions affect stability and performance
H4 Biosensor components contaminate environment upon disposal L2 H4.1 Releases toxic chemicals upon degradation
H4 H4.2 Lack of proper disposal channels in underserved regions

Risk Mitigation Strategies

  • Proper storage and disposal of the sensor and biomaterials.
  • Safe handling of biomaterials to prevent infections or disease spread.
  • Ongoing and documented consent of participants.
  • Medical device compliance with Health Canada or other regulatory bodies.
  • Documentation of all collected data and diagnostics, including errors.
  • Follow all safety protocols and datasheet recommendations for materials.

References